CONSIDER the following scenario. Researchers from a biotech company want to
enlist a family with a rare genetic mutation for a study into dementia. They
strongly believe that they can identify one of the genes involved in the disease
in this family, and if they do the company stands to make a large amount of
money. The researchers aim to persuade the family to take part in the study by
offering each member $10,000. All they would have to do is give some
saliva samples.
In many countries today such a scenario is inconceivable. Researchers
are not allowed to…
